Partners in care emerge from unexpected beginnings

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Partners in care emerge from unexpected beginnings

The Neonatal Therapy Certification Board (NTCB) welcomes Jordan Nicole Starr and Katie Reginato Cascamo as public members. Jordan and Katie are former parents of NICU infants and consumers of neonatal therapy services and will ensure the public voice is heard. This will help the NTCB achieve the highest standards of excellence.

From the unexpected beginnings that both NTCB public members experienced emerges an incredible opportunity for the NTCB to partner in care to benefit high risk infants and their families. This will also create a better-informed neonatal therapy community. Hear some insights of these parents related to their stay.

“In every person’s life, they encounter events or people that help shape who they are. Some of these experiences even make them feel as though they are two different people, the person before the event and the person after it. This is especially true for people who have experienced some type of trauma. For me, that life-shaping experience was my NICU journey and the birth of my two beautiful babies at 28 weeks. From the first day I stepped into the NICU, I knew I had become a different person when Sophia and Carson defined that they would not be full-term babies. I literally felt an immediate change and I was bombarded with an array of emotions. I felt fear, happiness, sadness, and most of all anxiety about all of the unknowns. My experience forced me to put away the ‘perfect pregnancy and birth’ dream and embrace a new reality. It provided me with a new understanding of life,” recounts Jordan as she describes her experience in the NICU.

“The NICU staff was the center of our world. They were our ground,” articulates Katie.  Having to be airlifted during a blizzard from a rural hospital in Oregon to a regional center of excellence to deliver her son, Giovanni, at 30 weeks, Katie recalls the moment that she understood her calling. “As I was emergently being taken to another hospital, I felt like the healthcare professionals were doing this beautifully orchestrated dance, like the Nutcracker, with everyone simultaneously knowing their role.” It was in that moment that Katie describes, “…my calling came to exist. It was the peace of being fully present, a moment of intuivity. I knew I was no longer the boss.” In the NICU, Katie recollects a shift, “The importance of me being the primary caregiver was infused. My son and our family were cared for by highly emotionally intelligent servant leaders that equipped me to overcome my fears and take a lead role in caring for my son.”

While Jordan’s and Katie’s stories are unique, they share a common theme of carrying forward the wisdom gained from their experiences. They both echoed the same sentiment, “Everything I learned in the NICU, I use every day.” 

“I’ve come to realize everyone’s future is somewhat unknown, but it is even more so with NICU babies. Having this experience is the reason I started a support group with parents of graduates so we can share our story and give parents answers to their never-ending questions of ‘life after the NICU’.” In addition to being the Autism Services Program Manager for Easter Seals Midwest Autism Services, Jordan has made it her mission to support NICU caregivers and has grown her support group to include two lead mentors, three graduate mentors and 65 members who include nurses, therapists, graduates, and inpatient families.

“Without my NICU story, I have no career. All the work I do is directly related to what I learned in the NICU. I learned more than just caring for a baby. I was taught mindfulness, to listen, to have courage and confidence to overcome barriers, to have self-empathy and allow for self-healing.” Katie subsequently pursued a Master of Arts in Organizational Leadership and is currently pursuing her PhD in Leadership Studies, in addition to starting her own leadership development and consulting business, Courageous Steps. “As a leadership practitioner in the helping profession space, I now teach presence, connection, and rediscovering self-leadership with a focus on helping organizations encourage growth and discover solutions.”

No one chooses a complicated pregnancy, an early delivery, or for their newborn to be admitted to the NICU. How can neonatal therapists align with parents’ needs? Jordan discloses that neonatal therapists need “patience and an understanding of how to meet the parents where they are and teach them at their level.” She reveals that “it’s hard to connect in a world of fear for your child, but when an exceptional therapist takes the time to listen to the parents’ struggles, they can have a better understanding on how to teach and support the family unit, not just the child.” Katie provides additional insights, “A straight logical and task-oriented approach with parents experiencing trauma will go right past us. It’s the highly emotionally intelligent, interpersonal skills with the technical skills that prepare us to graduate the NICU and care for our babies.” Katie also expressed the importance of neonatal therapists making their presence and purpose known. “I wish the therapist made themselves more obvious stating what their role is and providing the ‘why’ behind what they do.”

By joining the NTCB, Jordan and Katie have declared their intention to support the mission to recognize and advance inter-professional neonatal therapy through evidence-based certification standards including validation of clinical experience and knowledge essential for effective delivery of neonatal therapy. “My goal is to give a parent’s perspective on ensuring that the NICU therapists receive consistent training that will advance their skills and knowledge for teaching and supporting preemies and their families,” states Jordan. Katie agrees, “The value of knowing that a Certified Neonatal Therapist is providing services would increase my trust in the services provided and it would tell me there is a level of credibility in the care given.”

Thank you to Katie and Jordan for volunteering your time to the mission of the NTCB and helping us understand the importance of the Certified Neonatal Therapist in optimal care.

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Testimonials

See what others have to say about their experience with us!

Vanessa Nimon
PT, CNT
“I have spent many days fighting for respect and proving myself to other professionals in the NICU. Earning the title of Certified Neonatal Therapist has helped minimize that fight.”
Casey Manning
M.S. CCC-SLP, CNT, NTMTC
Before the exam:
“The Neonatal Therapy Certification process has made me a more well rounded developmental care specialist. It has forced me to step out of my feeding/dysphagia bubble and I have been able to apply my new knowledge every time I interact with a baby and their caregivers.”

After the exam:
“The test was a challenging yet fair representation of what an advanced NICU therapist should know. I strongly encourage every NICU therapist to pursue certification. You owe it to your patients to be the best therapist you can be!”
Chelsea Moss
MA, CCC-SLP, IBCLC, CNT
“As a speech pathologist in the NICU, I was initially hesitant to become a CNT because I thought it would be more geared towards OT/PT studies. What I learned in my journey towards the certification is that everyone who comes in contact with an infant in the NICU benefits from the complex knowledge of neuro development. A different mindset, apart from simply “safe feeding” engulfed my daily practice. My OT coworker (and also CNT) and I began to tag-team ways to incorporate gentle, kind touch into each interaction with the infants. Often our efforts “rubbed off” on other coworkers and parents. My feeding skills have been enhanced by my all-in focus when encountering each baby. It’s not just safe feeding with no aspiration, it’s enjoyable experiences at each feeding time, whether bottle feeding or tube feeding. It’s preventing severe oral aversions in complex cases instead of undoing negative feeding experiences for years to come. I am a better therapist because of my studies to become a CNT.”
Cynthia Armstrong
M.S., CCC-SLP, BCS-S, CNT
“I am extremely grateful for the opportunity to become a Certified Neonatal Therapist (CNT) in 2018, through the Neonatal Therapy Certification Board (NTCB).I believe this qualification is very relevant to practice in the United Kingdom (UK) as it helps raise the profile of neonatal therapy and also promotes a core knowledge base and practice. I truly believe that all neonatal therapists should have the same theory and knowledge base when working with this high-risk population, their intervention and level of involvement for each patient may well be slightly different. The certification process requires collaborative working. I am extremely fortunate in my setting to have a speech and language therapist who was prepared to relentlessly ask me questions on neonatal feeding, until she felt I was competent enough to the take the exam. I hope that more neonatal therapists in the UK consider taking this examination, the more people who talk about neonatal therapy, the louder our voices will be. I hope that one day every family and their baby who enter the neonatal unit continue to have access to good medical and nursing care, but also have access to all neonatal therapy; occupational therapy, physiotherapy and speech and language therapy. I hope that every therapy discipline has the credentials to highlight their specialty and knowledge and that no family is asked to choose between receiving occupational therapy or physiotherapy or speech and language therapy again. I believe that becoming certified in neonatal therapy is definitely a step in the right direction.”
Emily Hills
OT, MSc, CNT, NTMC
Heidi Stubb
OT, CNT
“I feel like I come to the NICU with a wider breadth of knowledge and appreciation for all the aspects of developmental care.”
Julie Ecclestone
MA, CCC-SLP, CNT
“I pursued the Certified Neonatal Therapist Certification because working with infants in the NICU is a passion of mine. It has grown exponentially through the years and I felt the time was right to prove to myself, my team, and my management staff that I had the skills and competency to lead in the NICU.”
Cameron Harris
OTR/L, NTMTC, CNT
“The process of preparing for the neonatal therapy certification exam was as beneficial as taking the examination because of the knowledge gained. The resource list is invaluable and I refer to it almost daily.”
Lauren Adams
PT, PCS, CNT
“I was so worried that I would fail the exam (and be embarrassed) that I did not tell my boss I was taking it. Then I took it and found out right away that I aced the exam.It helped me be more confident in myself as a clinician. Reading the literature that was provided was great in helping me prepare and helped me understand what parts of my practice are evidence based.”
Ruth Wilkerson
OTR, CLC, NTMC, CNT
“As a new therapist, I was passionate about achieving certification to demonstrate competence and promote our profession as an advanced area of practice. Following extensive mentorship in the NICU, and after meeting the minimum requirements for certification, I became a certified neonatal therapist! I am thrilled to be a part of a growing profession who now has a successful pathway for developing competency that will continue to establish our profession as an essential component of NICU care.”
Lisa Olsen
OTDR/L, CNT

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